Thursday, October 8, 2009

Change of plans

Paige did not have her ENT surgery today. The night before last, Paige spiked a 102 fever. I assumed ears as she has difficulty with fluid (or so they say without ever actually looking). So I had hal take her in yesterday to be examined. They said NOT her ears and they didn't know what was the cause. SO they admitted her because she's so young. I'm sorry but unless you have children, it's hard to ever say you can understand how awful it is to see a child go through what Paige has just undergone. I'm only home for an hour and then I'm rushing back in there but I wanted to take a minute to update everyone who is aware of the situation.

A complete list of what Paige has undergone and their results...

Nasal swab- yielded NO flu or other serious illness of this orgin
SPINAL TAP- Yes my poor baby had to have a spinal tap! It was horrible to her hear screaming and not being able to go in and comfort her. Spinal tap yeilded a viral result. So not menegitis (thank GOD!) or other bacterial infection of that kind.
CBC said that her white blood cells were a little low. They repeated today and it was the same. Dr is not too worried about it though.
Blood test resulted in a staf infection. They think it was contaminated.

Currently she is still running a fever so is taking tylenol every 4 hours. She is also getting really high levels of antibiotic in an IV every 6 hours.

She is eating "okay" and is in generally good spirit when she is medicated. She is sleeping a LOT but wants to be held all the time. Mommy has gotten NO sleep in the last 2 nights and probably won't again tonight.

It's pretty horrible seeing my 6 week old so sick. They said she could have gotten it from anywhere. It doesn't help that Owen and Madison are starting to get sick too but not half as bad as a 6 week old would. The dr said it's standard procedure for a young baby as she is.

So anyways, it's been a crappy 2 days and is only getting better. They inticipate that we MIGHT get to go home tomorrow afternoon. I personally am in no hurry except to get this awful looking IV outta my baby girl. She hates it. They also have her hook to a Respitatory monitor, APnea monitor, and O2 monitor to check her stats. It pretty much SUCKS!

Her surgery has been rescheduled to November 4th. I also HAVE a LIP SURGERY DATE of January 8th! I was pretty excited to get that news yesterday! Things are falling into place with that! I'm pretty happy to be 2 months away from being DONE with her NAM!

Thank you to all of you who have called and checked on Paige. Expecially THANK YOU to everyone who has volunteered to help with Owen and Madison. Although it doesn't seem to work out. This is a whole other blog but I'm basically sick and tired of people who claim to want to help but are conventantly unavailable anytime we ask for help. So those of you who have helped or those of you who have offered but it just hasn't worked out...THANK YOU! We appreciate each and everyone who is there for us when we ask!


Tonja said...

Wow! I'm so sorry to hear all of this! I had no idea this was all going on. I hope she starts feeling MUCH better soon! Take care of yourself, Mandy!

Sheryl said...

Thinking of you guys!!! Wish I was closer so I could help!

Jenny said...

Oh gosh, that poor baby has been through too much at such a young age. I hope she gets better soon Mandy, hang in there!!

Vandy said...

HUGS Mandy! Been thinking about all of you! I hope Paige feels better very, very soon!

Lyns said...

Things will get better! In the mean time stay in survival mode. I'm so sorry!! (((HUGS)))