Paige had her first adjustment to her NAM today. It took them about 15 minutes to complete the entire visit. We drive 2 hours down and 2 hours back for a 15 min appt. But, she is now weighing 8 pounds and 15 ounces (her birth weight). The dr at Meadville Peds said she was 9, 2 last week but I am just going to go with Children's as they will weigh her every week. I also asked about the scope that they want to use on her. They want to put a scope down my poor baby's throat in a month to check on the strider that she has. Regina (nurse practioner) said that if she is not having any difficulty breathing, than we can probably go ahead and cancel it but that we will wait a little longer to make sure. To me, I say cancel! The risks outweight the benefits here. Strider is something they can outgrown (Madison did). She's NOT turning blue or anything. I'm still worried about it but I also have to trust that they know what they are doing. I do NOT want the scope if all possible!!!
Paige does have thrush but it's not on the back of her throat like her Ped thought. That was actually because the NAM was too big for her mouth and was causing a sore in her mouth. Poor baby! So we are going to continue the meds and they made her NAM shorter so it won't bother her anymore. Thank goodness for that!
All in all, it was a decent appointment. We took Owen and Madison with us so they could see where Paige has to see the doctor to "fix her lip." They have no idea of the palate as I think that might freak them out at this point. We are trying to keep it simple for them and let them know that Paige is in good hands. We will explain all of it when the time comes and they are able to understand it a little better. There are no secrets about it but just taking it one step at a time.
Paige's next appt is next Wednesday at Children's Hospital and also in Meadville at Audiology on Friday.
Tuesday, September 1, 2009
Second Appt at Children's Hospital
Sunday, August 30, 2009
Madison has finally achieved...
a DRY BED AT NIGHT! Yeah! She has been potty trained for about 9 months or so but she has had to wear a diaper to bed just in case. Most nights and she's dry so we decided it was time to go without the diaper. So far, so good! 3 nights and only one accident. Let's hope this keeps up! They grow up so fast!!
Paige's first Ped appt!
She is growing! Paige is now up to 9 pounds and 2 ounces. She is over her birth weight in one week! She is doing great. She was diagnosed with strider however. It's basically "floppy airway." She is louder than most babies in that she squeeks and grunts and sounds like she has a cold. Maddie had this too and hopefully she just outgrows it. And she also has a case of thrush ALREADY. They said she is more prone to it seeing how her nose cavity is connected to her mouth. Yuck! Poor baby has to take this horrible medicine that she doesn't really like. She does awesome with it but really hates it!
She is doing great with her NAM now. She doesn't care that it's there and it's getting much easier to take in and out to clean. We have changed the tape a few times and she just lays there and lets us do it. She's a great baby!
Friday, August 28, 2009
Thank you and I'm Sorry....
I just wanted to put a little thank you on here to everyone who has been sending us well wishes and prayers. You don't know how blessed you truly are with great friends and family until something has happened. We are blessed with Paige and look forward to the end conclusion of all this. We are truly enjoying Paige as she is a really sweet baby! It's so vitally important to remember to take the time to just enjoy this little precious gift from God, just as you would any other children. So thank you to all who have been there for us thus far! :-)
Also...I'm sorry! I know everyone wants me to call them and keep them up to date with progress. But, right now it's so hard for us to do that. That's why I'm blogging so much. It's much easier for us to explain it one time rather than fifty. So while we love all of you, don't get upset if we don't call as much. Please just know that you can call and check up with Paige or read the blog too. Right now, we are trying to focus on what it takes to have 3 kids! I'm tired, Hal has school starting on Monday and Owen starts Kindergarten in less than a week. As you can tell, we are a bit stretched thin. :-) Everyone has always told me that I do too much and am the energizer bunny. Well, these days I definitly would appreciate a day home doing nothing. :-)
Thursday, August 27, 2009
On a happy note
Owen went for his kindergarten orientation today. Boy oh boy does he have an interesting class. He is going to be in class with some of the kids that he went to Pre-K with. Bad combination to say the least. I think he will like his teacher though and he was really excited to go. Almost, too excited! :-)
