Second Appt at Children's Hospital

Paige had her first adjustment to her NAM today. It took them about 15 minutes to complete the entire visit. We drive 2 hours down and 2 hours back for a 15 min appt. But, she is now weighing 8 pounds and 15 ounces (her birth weight). The dr at Meadville Peds said she was 9, 2 last week but I am just going to go with Children's as they will weigh her every week. I also asked about the scope that they want to use on her. They want to put a scope down my poor baby's throat in a month to check on the strider that she has. Regina (nurse practioner) said that if she is not having any difficulty breathing, than we can probably go ahead and cancel it but that we will wait a little longer to make sure. To me, I say cancel! The risks outweight the benefits here. Strider is something they can outgrown (Madison did). She's NOT turning blue or anything. I'm still worried about it but I also have to trust that they know what they are doing. I do NOT want the scope if all possible!!!

Paige does have thrush but it's not on the back of her throat like her Ped thought. That was actually because the NAM was too big for her mouth and was causing a sore in her mouth. Poor baby! So we are going to continue the meds and they made her NAM shorter so it won't bother her anymore. Thank goodness for that!

All in all, it was a decent appointment. We took Owen and Madison with us so they could see where Paige has to see the doctor to "fix her lip." They have no idea of the palate as I think that might freak them out at this point. We are trying to keep it simple for them and let them know that Paige is in good hands. We will explain all of it when the time comes and they are able to understand it a little better. There are no secrets about it but just taking it one step at a time.

Paige's next appt is next Wednesday at Children's Hospital and also in Meadville at Audiology on Friday.